Lillian was born at just 30 weeks, weighing just a little more than a pound. For the first six years of her life, Lillian suffered through numerous undiagnosed symptoms and traveled from hospital to hospital. Then her parents took her to Children’s Hospital of Wisconsin, where the Genomic Medicine Clinic found a mutation in her DNA that causes Trichohepatoenteric Syndrome.
Check out Lillian’s full story below.
Without the Genetics & Genomics Program at Children’s Hospital, Lillian’s family may have never figured out what was keeping her from thriving. We are proud everyday to support Children’s Hospital through Louie’s Last Regatta. #ItsForTheKids